About YOP-X

The Young Onset Parkinson’s eXchange (YOP-X) provides an innovative App and online resources to act as an information portal for those living with young onset Parkinson’s. YOP-X. It provides a fast track to collect and collate information relevant to NDIS applications and reviews. It also acts as a valuable workforce tool for NDIS staff and health professionals.

Evidence from people with young onset Parkinson’s and their care persons suggested a lack of information, education around and understanding of the condition including its symptoms, progression and early intervention supports that allow for social, community and economic participation. Information and supports that did exist were not well targeted those diagnosed with young onset Parkinson’s. Furthermore, support is often not easily accessible for people with competing demands such as employment, family and school commitments, sport, social events and activities or those who live outside of metropolitan and major regional centres. 

Another issue highlighted was the importance of NDIS and other health professionals being able to meet the needs of clients living with young onset Parkinson’s. This is done by understanding the condition, symptoms, issues and the early intervention supports necessary to enable clients to participate more fully in family, work, social and recreational life. YOP-X provides an opportunity for NDIS staff and other health professionals to explore the issues faced by people living with young onset Parkinson’s, through their shared personal experiences.

YOP-X works to remove barriers preventing clients, NDIS staff and other health professionals to accessing high quality tools and resources regarding young onset Parkinson’s. It provides targeted delivery of information through online and App-based platforms suited to people under the age of 65.