Being in an intimate relationship is very important to me. I am currently in an intimate relationship, and I do feel different about intimacy than before I was diagnosed. There is shame. I am experiencing both physical and emotional barriers to a satisfying intimate relationship. I have not undertaken any treatments that have impacted positively or negatively on my relationship, for example medications or procedures such as Deep Brain Stimulation (DBS). The factors impacting on my ability to have an intimate relationship include fatigue, lack of sleep, tremor, slowness of movement and negative body image. I have experienced a lack of sexual desire and difficulty in reaching an orgasm. Strategies that are useful or may be useful include taking a more passive role during sex. I don’t know if it would be useful for the App to provide free access to a Relationship Therapist for online advice specifically in relation to young onset Parkinson’s. Would it be private? I would like a Relationship Therapist to know about young onset Parkinson’s and positive solution focused strategies. Questions we should be asking children should be – What do you know? What do you want to know?
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