For people living with young onset by people living with young onset.

An app and resource hub with information on how to live well and manage young onset Parkinson’s.

With the YOPX app you can:

manage info for your NDIS application
set and achieve goals
access resources and videos
manage daily tasks
set reminders
and much more…

Developed as a living lab model, the experiences, ideas, knowledge, and daily needs of people with young onset Parkinson’s have underpinned all Young Onset Parkinson’s Exchange (YOPX) app and website content.

More than one hundred individual stories and experiences shape our tips, tools, and resources.

step-by-step NDIS

app overview

newly diagnosed

Resources for people living with young onset Parkinson’s carers, family and friends. Collection of lived experience stories and case studies for up-skilling the newly diagnosed and their care teams.

who is YOPX for?

The YOPX app provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, planning meetings and reviews. It is a one stop shop for information relevant to navigating a future with young onset, managing symptoms and continuing to live well with Parkinson’s.

The website acts as a valuable workforce tool for NDIS staff and health professionals by sharing stories to increase understanding of people living with young onset and the challenges they face in their daily lives. There are also resources for carers, family and friends to help them understand your new normal while also getting linked to support for themselves.

why did we make it?

Evidence from people with young onset Parkinson’s and their care persons suggested a lack of information, education around and understanding of the condition. More needs to be understood about its early symptoms and intervention therapies that allow for social, community and economic participation.

Information and supports that do exist are not well targeted those diagnosed with young onset Parkinson’s. Furthermore, support is often not easily accessible for people with competing demands such as employment, family and school commitments, sport, social events, and activities or those who live outside of metropolitan and major regional centres.

Another issue highlighted was the importance of NDIS and other health professionals being able to meet the needs of clients living with young onset Parkinson’s. This is done by understanding the condition, symptoms, issues, and the early intervention supports necessary to enable clients to participate more fully in family, work, social and recreational life. YOPX provides an opportunity for NDIS staff and other health professionals to explore the issues faced by people living with young onset Parkinson’s, through their shared personal experiences.

about the app

Tailor your access to information and support depending on where you are on your journey with young onset Parkinson’s.

YOPX works to remove barriers preventing clients, NDIS staff and other health professionals to accessing high quality tools and resources regarding young onset Parkinson’s. It provides targeted delivery of information through online and app-based platforms suited to people under the age of 65.