For people living with young onset by people living with young onset.

An app and resource hub with information on how to live well and manage young onset Parkinson’s.

With the YOPX app you can:

  • manage info for your NDIS application
  • set and achieve goals
  • access resources and videos
  • manage daily tasks
  • set reminders
  • and much more…

Developed as a living lab model, the experiences, ideas, knowledge, and daily needs of people with young onset Parkinson’s have underpinned all Young Onset Parkinson’s Exchange (YOPX) app and website content.

More than one hundred individual stories and experiences shape our tips, tools, and resources.

Resources for people living with young onset Parkinson’s carers, family and friends. Collection of lived experience stories and case studies for up-skilling the newly diagnosed and their care teams.

The YOPX app provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, planning meetings and reviews. It is a one stop shop for information relevant to navigating a future with young onset, managing symptoms and continuing to live well with Parkinson’s.

The website acts as a valuable workforce tool for NDIS staff and health professionals by sharing stories to increase understanding of people living with young onset and the challenges they face in their daily lives. There are also resources for carers, family and friends to help them understand your new normal while also getting linked to support for themselves.

Evidence from people with young onset Parkinson’s and their care persons suggested a lack of information, education around and understanding of the condition. More needs to be understood about its early symptoms and intervention therapies that allow for social, community and economic participation.

Information and supports that do exist are not well targeted those diagnosed with young onset Parkinson’s. Furthermore, support is often not easily accessible for people with competing demands such as employment, family and school commitments, sport, social events, and activities or those who live outside of metropolitan and major regional centres.

Another issue highlighted was the importance of NDIS and other health professionals being able to meet the needs of clients living with young onset Parkinson’s. This is done by understanding the condition, symptoms, issues, and the early intervention supports necessary to enable clients to participate more fully in family, work, social and recreational life. YOPX provides an opportunity for NDIS staff and other health professionals to explore the issues faced by people living with young onset Parkinson’s, through their shared personal experiences.

Tailor your access to information and support depending on where you are on your journey with young onset Parkinson’s.

YOPX works to remove barriers preventing clients, NDIS staff and other health professionals to accessing high quality tools and resources regarding young onset Parkinson’s. It provides targeted delivery of information through online and app-based platforms suited to people under the age of 65.

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Have you had a look at Parkinsons Parkinsons Australias 2025 Election Wishlist or found your electorate in the Ecosystem of Parkinsons in Australia report yet? Take a look today and share during Parkinsons Awareness Month this April. @followers Move YOPD World Health Organization (WHO) Australian College of Nurse Practitioners Shake It Up Australia Foundation for Parkinsons Research NDIS National Disability Insurance Scheme PD Warrior Global TribeImage attachmentImage attachment+6Image attachment

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On top of this exciting line up of topics covering wellbeing & research, there will be an NDIS National Disability Insurance Scheme session and a Parkinsons & employment: the ins & outs early Tuesday session covering medical retirement planning, taxation on superannuation or insurance claims, income protection, total and permanent disability insurance that would be geared towards those living with #YOPD and their care partners at the @Parkinsons Australia National Conference 2025. Hope you can make it! Theres still a few tickets left and wed love to see you there. @followers Move YOPD Shake It Up Australia Foundation for Parkinsons Research Young Onset Parkinson’s South Australia PD Warrior Global Tribe PD AvengersImage attachmentImage attachment+3Image attachment

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What is the carer’s room?

My husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Sifrol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD-5 natural herbal formula we ordered from AKANNI HERBAL CENTRE, his symptoms totally declined over a 3 weeks use of the AKANNI HERBAL Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! (Visit w w w.aknniherbscentre .com)

🌟 Attention Young Onset Parkinsons Community! 🌟 The countdown is on—only ONE WEEK LEFT until the Parkinsons Australia Conference in Canberra! 🗓️ This is your chance to connect, learn, and be inspired with others who truly understand the YOPD journey. Together, well explore the latest in research, treatment breakthroughs, and strategies to empower your everyday life. Plus, its a unique opportunity to share experiences and make lifelong connections with peers, advocates, and healthcare professionals. 📍 When: Welcome Reception kicks off the conference from 5 to 7 pm on Sunday April 6th - then two days of sessions on research and wellbeing from local and international experts 📍 Where: National Convention Centre Canberra 💥 Dont wait—spots are filling up fast! 💥 Book your tickets TODAY and be part of something extraordinary. Lets unite as a community, celebrate our resilience, and take steps toward a brighter future. Visit www.parkinsons.org.au/conference to secure your place! Lets make this conference unforgettable. 🙌 #ParkinsonsAustralia #YOPD #CommunitySupport #ConferenceCountdownImage attachmentImage attachment

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If you are a #carer for someone with young onset Parkinsons, you may be eligible for government support through the Carer Allowance or Carer Payment and this does not preclude you from Respite Care. To understand respite care and how to ask for it, read on... Carer Gateway Carers SA NDIS National Disability Insurance Scheme #restandrecharge #carerburnoutImage attachmentImage attachment+6Image attachment

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My husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Sifrol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD-5 natural herbal formula we ordered from AKANNI HERBAL CENTRE, his symptoms totally declined over a 3 weeks use of the AKANNI HERBAL Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! (Visit w w w.aknniherbscentre .com)

World Poetry Day TODAY is themed Poetry as a Bridge for Peace and Inclusion, aiming to highlight poetrys transformative role in promoting peace, inclusion, and creativity. We know Parkinsons can inspire creativity, and Michael, a YOPX National Working Group member, shares a poem inspired by friends at our last face-to-face meeting. What creativity has Parkinsons given you? If you are happy to share, pm us 🤩 @followers PD Avengers ENDURE Far from city lights, Stars still shine. Go ahead, On your journey. Reach for resilience, But if that shape does not come for you, Be happy to endure, And shine. (MW, 2024. Original poem pictured below.)

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My husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Sifrol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD-5 natural herbal formula we ordered from AKANNI HERBAL CENTRE, his symptoms totally declined over a 3 weeks use of the AKANNI HERBAL Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! (Visit w w w.aknniherbscentre .com)

While it’s often seen as something only older adults need to consider, the reality is that Parkinson’s can affect people in their 20s to 50s too, and planning ahead provides peace of mind for both PwP and their loved ones. By having honest conversations early, you can: ✍️Ensure your wishes are respected: Document your preferences for medical care and treatment, so you’re prepared no matter what the future holds. 🥰Reduce stress for loved ones: Advance care planning gives your family clarity and confidence in making decisions on your behalf. 👍Maintain control: It allows you to take charge of your care, ensuring it aligns with your values and priorities. For people living with young onset, it’s also about safeguarding life’s milestones—whether you’re raising a family, building your career, or planning for retirement. Advance care planning provides a framework to protect what’s most important to you. Start the conversation today. 💙 #AdvanceCarePlanning #ParkinsonsAustralia #PlanAhead #ParkinsonsAwareness

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Our friends at The Growing Space have had a first look at NDIS National Disability Insurance Scheme rule changes & amendments. Tell us what you think.

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Download the YOPX app

The YOPX app is free to download on android and iOS devices.

Young person holding a smart phone showing the YOPX app