For people living with young onset by people living with young onset.

An app and resource hub with information on how to live well and manage young onset Parkinson’s.

With the YOPX app you can:

  • manage info for your NDIS application
  • set and achieve goals
  • access resources and videos
  • manage daily tasks
  • set reminders
  • and much more…

Developed as a living lab model, the experiences, ideas, knowledge, and daily needs of people with young onset Parkinson’s have underpinned all Young Onset Parkinson’s Exchange (YOPX) app and website content.

More than one hundred individual stories and experiences shape our tips, tools, and resources.

Resources for people living with young onset Parkinson’s carers, family and friends. Collection of lived experience stories and case studies for up-skilling the newly diagnosed and their care teams.

The YOPX app provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, planning meetings and reviews. It is a one stop shop for information relevant to navigating a future with young onset, managing symptoms and continuing to live well with Parkinson’s.

The website acts as a valuable workforce tool for NDIS staff and health professionals by sharing stories to increase understanding of people living with young onset and the challenges they face in their daily lives. There are also resources for carers, family and friends to help them understand your new normal while also getting linked to support for themselves.

Evidence from people with young onset Parkinson’s and their care persons suggested a lack of information, education around and understanding of the condition. More needs to be understood about its early symptoms and intervention therapies that allow for social, community and economic participation.

Information and supports that do exist are not well targeted those diagnosed with young onset Parkinson’s. Furthermore, support is often not easily accessible for people with competing demands such as employment, family and school commitments, sport, social events, and activities or those who live outside of metropolitan and major regional centres.

Another issue highlighted was the importance of NDIS and other health professionals being able to meet the needs of clients living with young onset Parkinson’s. This is done by understanding the condition, symptoms, issues, and the early intervention supports necessary to enable clients to participate more fully in family, work, social and recreational life. YOPX provides an opportunity for NDIS staff and other health professionals to explore the issues faced by people living with young onset Parkinson’s, through their shared personal experiences.

Tailor your access to information and support depending on where you are on your journey with young onset Parkinson’s.

YOPX works to remove barriers preventing clients, NDIS staff and other health professionals to accessing high quality tools and resources regarding young onset Parkinson’s. It provides targeted delivery of information through online and app-based platforms suited to people under the age of 65.

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1 CommentComment on Facebook

My husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Sifrol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD-5 natural herbal formula we ordered from AKNNI HERBAL CENTRE, his symptoms totally declined over a 3 weeks use of the AKANNI HERBAL Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! (Visit w w w.aknniherbscentre .com)

A soft voice. A stiff shoulder. Sleepless nights. Small changes like these can be early signs of Parkinson’s. This EOFY, help Aussies recognise the signs early to get support sooner. Donate by June 30 for your tax deduction and to support Parkinson’s Australia. ➡️ https://hubs.la/Q03qBMTz0 #GiveBackEOFY #parkinsonsawareness #earlysigns

0 CommentsComment on Facebook

More about the “check-in” calls you will receive when you are on an NDIS plan.

1 CommentComment on Facebook

And interestingly enough sometimes they aren't doing them just sending letters saying you plan is whatever for then next however long. No conversation at all

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0 CommentsComment on Facebook

Did you know, the first signs of Parkinson’s can appear more than a decade before a diagnosis? Loss of smell, mood changes, or muscle stiffness could be early signs... but many Aussies don’t know that. Your support helps fund awareness campaigns, tools for GPs, and resources for early intervention. Make your tax-deductible gift today: https://bit.ly/3FEevrd #earlywarningsigns #parkinsonsawareness #GiveBackEOFY This campaign has been supported by CMAX

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1 CommentsComment on Facebook

Parkinson’s doesn’t always start with a tremor. Early signs often go unnoticed — and that’s why awareness matters. 💜 Donate today: https://hubs.la/Q03q5t0b0 Sometimes it starts with: ✍️ smaller handwriting 👃 loss of smell 😴 trouble sleeping. This June, help Aussies recognise the first signs of Parkinson’s and take action earlier. #earlywarningsigns #parkinsonsawareness #GiveBackEOFY

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🧠💡We’re proud to be the first patient advocacy group contracted by the Australian Digital Health Agency to help people living with Parkinson’s build the skills and confidence to use digital health tools like: 📱 My Health App 💊 Electronic Prescriptions 📂 My Health Record Explore our easy-to-understand infosheets on how these technologies can support your health journey. 🔗 Visit our website to learn more: https://hubs.la/Q03pDRpr0 #Parkinsonspartnerships #DigitalHealth #MyHealthRecord #ePrescriptions #myhealthapp #cybersecurity

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This National Reconciliation Week (NRW) 2025 theme, Bridging Now to Next, reminds us that reconciliation is an ongoing journey—one that requires listening, learning, and taking action. For people living with Parkinson’s, equitable access to culturally safe healthcare is essential. We recognise the barriers that First Nations Australians face in accessing neurological care and commit to advocating for improved support, inclusion, and awareness. 📢 Join our next Virtual Roundtable to share your experiences. #ReconciliationWeek #BridgingNowToNext #ParkinsonsAustralia #HealthEquity #NRW2025

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Virtual Roundtable resume on June 3rd (10.00 AEST) with CEO, Olivia Nassaris. Join us for this important conversation, ensuring our advocacy & awareness efforts align with real needs. 🔗 Register Now: https://hubs.la/Q03p9fxG0 💜 💛#Advocacy #Awareness #HealthyConversations #parkinsonsdisease

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So lovely to see some Young Onset Parkinsons Exchange National Working Group members in this post. Thanks for all you do for the YOPX app and people living with young onset Parkinsons in Australia.

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Download the YOPX app

The YOPX app is free to download on android and iOS devices.

Young person holding a smart phone showing the YOPX app