For people living with young onset by people living with young onset.

An app and resource hub with information on how to live well and manage young onset Parkinson’s.

With the YOPX App you can:

  • manage your NDIS application
  • set and achieve goals
  • access resources and videos
  • manage daily tasks
  • set reminders
  • and much more…

Developed as a living lab model, the experiences, ideas, knowledge, and daily needs of people with young onset Parkinson’s have underpinned all young onset Parkinson’s exchange (YOPX) app and website content.

More than one hundred individual stories and experiences shape our tips, tools, and resources.

Resources for people living with young onset Parkinson’s carers, family and friends. Collection of lived experience stories and case studies for up-skilling the newly diagnosed and their care teams.

The YOPX app provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, planning meetings and reviews. It is a one stop shop for information relevant to navigating a future with young onset, managing symptoms and continuing to live well with Parkinson’s.

The website acts as a valuable workforce tool for NDIS staff and health professionals by sharing stories to increase understanding of people living with young onset and the challenges they face in their daily lives. There are also resources for carers, family and friends to help them understand your new normal while also getting linked to support for themselves.

Evidence from people with young onset Parkinson’s and their care persons suggested a lack of information, education around and understanding of the condition. More needs to be understood about its early symptoms and intervention therapies that allow for social, community and economic participation.

Information and supports that do exist are not well targeted those diagnosed with young onset Parkinson’s. Furthermore, support is often not easily accessible for people with competing demands such as employment, family and school commitments, sport, social events, and activities or those who live outside of metropolitan and major regional centres.

Another issue highlighted was the importance of NDIS and other health professionals being able to meet the needs of clients living with young onset Parkinson’s. This is done by understanding the condition, symptoms, issues, and the early intervention supports necessary to enable clients to participate more fully in family, work, social and recreational life. YOPX provides an opportunity for NDIS staff and other health professionals to explore the issues faced by people living with young onset Parkinson’s, through their shared personal experiences.

Tailor your access to information and support depending on where you are on your journey with young onset Parkinson’s.

YOPX works to remove barriers preventing clients, NDIS staff and other health professionals to accessing high quality tools and resources regarding young onset Parkinson’s. It provides targeted delivery of information through online and app-based platforms suited to people under the age of 65.

Connect with us

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Our friends at The Growing Space have a great summary of the NDIS National Disability Insurance Scheme Supports ins and outs list announced with the grace periods and important details (see below). 👇

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THIS IS REGARDING CHANGES TO NDIS FUNDING FOR PARTICIPANTS YOU CAN BOOK IN FOR TOMORROW ONLINE SESSION: events.humanitix.com/introducing-changes-to-ndis-legislation-for-participants?hxchl=hex-pfl

Changes to NDIS National Disability Insurance Scheme are coming... stay tuned to the YOPX app for updates as they are announced. Heres some on LACs from The Growing Space.

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My husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Siferol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD natural herbal formula we ordered from AKANNI HERBAL CENTRE, his symptoms totally declined over a 3 weeks use of the AKANNI HERBAL Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! (Visit w w w.aknniherbscentre .com)

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Did you know that 2 in 3 Aussies dont have a will? Whether it is the cost or the time it might take, weve got a solution for you! For a limited time, you can get a $0 will in about 20 minutes online through Parkinsons Australia and SafeWill Australia. Additionally, many people use this time to leave a gift in their will to Parkinson’s Australia and other charities close to their hearts. It’s a wonderful way to make a lasting impact and support our national advocacy, awareness raising, and other efforts to connect people living with Parkinson’s, their families and carers. https://bit.ly/3XzYtF3 #will #safewill #FWF #FreeWillsWeek @safewillau

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Interested

People living with young onset Parkinsons in the ACT & NT - WE NEED YOU!! Flinders University is evaluating the Young Onset Parkinson’s Exchange (YOPX) App, which has received Ethics Approval (HREC 7519). Our goal is to recruit individuals diagnosed with young onset Parkinson’s Disease (YOPD) from all states and territories for this nationwide study. However, so far no one from the ACT or NT is eligible. During an eight-week period, participants will engage with the YOPX App and contribute through self-reporting measures, surveys, and online forums. Please take a look at the poster for eligibility requirements. If you are interested in contributing to this important research or know someone who might be, you can contact Dr Joyce Ramos (contact details in pdf link here: .https://youngonsetparkinsons.org.au/wp-content/uploads/2024/08/YOPX-Mobile-App-Promotion-A4.pdf). There are no costs associated with participating in this research study. In addition, you will be reimbursed AU$50 gift voucher for your participation in this study. Simply reach out to Dr Ramos to get started.

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How to participate?

Download the YOPX app

The YOPX app is free to download on android and iOS devices.

Young person holding a smart phone showing the YOPX app