Hearing the words, ‘You have Parkinson’s’ can be overwhelming, especially when you are in your 20s to 50s. You have different challenges from those typically diagnosed later in life. Getting the right information and support from the start isn’t easy, but the YOPX app and website are here to help you live well with Parkinson’s.
Useful resources to live well with young onset Parkinson’s.
If you have been diagnosed with Parkinson’s, or are supporting someone who has, we have information for you. The YOPX app can help you navigate the NDIS step-by-step. It will collate information from your surveys, questionnaires and check-ins and email it to you. You can also generate letters for your workplace to assist with securing flexible work arrangements. Care partners can find out about supports available to them and young carers (aged 5-25). Allied Health Professionals, LACs and NDIS staff can read real life stories about what it is like to live with young onset.
App overview
Home Page
Quick facts, noticeboard, and topics
App overview
Profile
Customise your details and preferences
App overview
Noticeboard
See timely updates, surveys and notices
App overview
Parkinson's 101
FAQS, Articles, Driving, Employment & Legal, Find Support, Friends, Family & Carers, Videos
App overview
Living Well with Parkinson’s
Exercise, Hydration, Medications, Nutrition, Relationships, Sleep
App overview
Managing Symptoms
Assemble a Care Team, Fatigue & Energy, Gut, Bladder, Bowel, Mental Wellbeing, Procedures, Train your Brain, Technology
App overview
My NDIS Info
Articles, Step-by-Step NDIS Guide, Check-ins & Questionnaires, Goal-setting, Primary support person's statement, Export PDFs, Call NDIS
App overview
Friends, Family & Carers
FAQs, Articles, Carer Check-in, Find Support, NDIS' Primary Support Person's Statement, Relationships, Videos
App overview
NDIS & Health Professionals
Articles, NDIS' Supporting Evidence Form, YOP Stories
Donations
Your donation helps us to achieve our core business, to improve the lives of people affected by Parkinson’s in Australia through national advocacy, raising awareness and connecting people living with Parkinson’s, their families and carers, researchers, and health professionals in the Parkinson’s community.
