Tailor your access to information and support depending on where you are on your journey with young onset Parkinson’s.

Overview

You may have been recently diagnosed, or may have been managing your symptoms for some time, and this can affect the type of tools and resources that may be of assistance for you. You can use the YOP-X App to: 

The YOP-X App also provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, to get an NDIS application right the first time. 

The Six Pillars in detail

You may be experiencing times where everyday activities feel too difficult. Often the non-visible symptoms of young onset Parkinson’s are apathy, anxiety, and depression. Access strategies and tools to maximise your wellbeing. 

There are strategies that can assist you to remain in employment, and continue as a valued member of the workforce. You may require some readjustment, support and allowances for possible variation to your role. Assess where you are. 

Exercise can reduce the symptoms of young onset Parkinson’s and may slow its progression. Nutrition can also play a vital role, as your nutritional requirements may change over time. Update yourself on the latest research, or chose a workout. 

You may be doing Parkinson’s solo, be in a long-term relationship, or may have recently met your partner. Changes in relationship responses and functioning can come with Parkinson’s. Access strategies and supports as an individual or as a couple. 

While sleep may become even more important as your body restores itself, you may experience challenges with falling asleep, staying asleep and the effects of fatigue. Improve your sleep patterns, overcome fatigue and maximise your energy. 

The brain has the ability to change in response to stimuli and experience. Certain activities can encourage the brain to use the dopamine it has more effectively, and create changes in the brain that can impact positively.

Thank you to our participants

Thank you to everyone who participated in first round of national surveys on: 

  • Employment Experiences for People With Young Onset Parkinson’s 
  • Relationship Experiences for People With Young Onset Parkinson’s 
  • Sleep Experiences for People With Young Onset Parkinson’s 
  • Partner Relationship Experiences 
  • Our second national survey round will open in late April, and will focus on: 
  • Pain Experiences for People With Young Onset Parkinson’s 


We are still collecting responses – to register your interest, or to complete surveys from the first round please get in touch.

Primary Support Person Consultation

In May, a national Primary Support Person Consultation will commence to further explore issues for people supporting those with young onset Parkinson’s. For more information or to participate in the consultation please get in touch!
Device MHEW Prompt Me
Device EL Letter Generator
Device EN Survey
Device RSI Survey
Device SFE Sleep Check In
Device CYB Survey

NDIS Wallet Overview

In an Australian first, the YOP-X NDIS Wallet provides an efficient way to consolidate everything that the NDIS needs to know about someone with young onset Parkinson’s to consider an NDIS application, It utilises a streamlined process to assist people to describe their worst day, a key requirement of the NDIS application process. Additionally, The YOP-X App offers a goal-setting tool allowing for the collection of short, medium and long term goals, another key requirement of accessing NDIS funding.

Photo NDIS Wallet