With the YOPX App you can:

  • manage your NDIS application
  • set and achieve goals
  • access resources and videos
  • manage daily tasks
  • set reminders
  • and much more…

Developed as a living lab model, the experiences, ideas, knowledge, and daily needs of people with young onset Parkinson’s have underpinned all young onset Parkinson’s exchange (YOPX) app and website content.

More than one hundred individual stories and experiences shape our tips, tools, and resources.

Resources for people living with young onset Parkinson’s carers, family and friends. Collection of lived experience stories and case studies for up-skilling the newly diagnosed and their care teams.

The YOPX app provides a fast track for people with young onset Parkinson’s to collect and collate information relevant to their NDIS applications, planning meetings and reviews. It is a one stop shop for information relevant to navigating a future with young onset, managing symptoms and continuing to live well with Parkinson’s.

The website acts as a valuable workforce tool for NDIS staff and health professionals by sharing stories to increase understanding of people living with young onset and the challenges they face in their daily lives. There are also resources for carers, family and friends to help them understand your new normal while also getting linked to support for themselves.

Evidence from people with young onset Parkinson’s and their care persons suggested a lack of information, education around and understanding of the condition. More needs to be understood about its early symptoms and intervention therapies that allow for social, community and economic participation.

Information and supports that do exist are not well targeted those diagnosed with young onset Parkinson’s. Furthermore, support is often not easily accessible for people with competing demands such as employment, family and school commitments, sport, social events, and activities or those who live outside of metropolitan and major regional centres.

Another issue highlighted was the importance of NDIS and other health professionals being able to meet the needs of clients living with young onset Parkinson’s. This is done by understanding the condition, symptoms, issues, and the early intervention supports necessary to enable clients to participate more fully in family, work, social and recreational life. YOPX provides an opportunity for NDIS staff and other health professionals to explore the issues faced by people living with young onset Parkinson’s, through their shared personal experiences.

Tailor your access to information and support depending on where you are on your journey with young onset Parkinson’s.

YOPX works to remove barriers preventing clients, NDIS staff and other health professionals to accessing high quality tools and resources regarding young onset Parkinson’s. It provides targeted delivery of information through online and app-based platforms suited to people under the age of 65.

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Introducing the first #panc2025 speaker - Professor Roger Barker. He is the Professor of Clinical Neuroscience at the University of Cambridge and Consultant Neurologist at Addenbrookes Hospital. He runs the regional NHS clincs for Huntingtons disease & Parkinsons disease. His research investigates the heterogeneity of these disorders and its basis informing work he has done on trialing new experimental therapeutics for these conditions including cell and gene therapies as well as drug repurposing. 

We are thrilled to have Roger onboard, and look forward to hearing from him at the event. If you havent already, be sure to secure an early bird ticket BEFORE 30 JUNE, by following the link --> https://www.parkinsons.org.au/event/panc/

#parkinsonsaustralia #parkinsonsaustralianationalconference #keynotespeaker #conference #panc2025 @followers PD Avengers Young Onset Parkinson’s South Australia Living & Working with Parkinson’s in Australia and New Zealand PD Warrior Global Tribe Young onset Parkinsons World Parkinson Congress

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My spouse was diagnosed with Parkinson's disease. His symptoms included excruciating calf pain, muscular aches, tremors, slurred speech, frequent falls, loss of balance, and trouble standing up from a seated posture. After six months on Senemet, Siferol was given to him in place of the Senemet. It was also at this period that he was diagnosed with dementia. He began seeing hallucinations and became detached from reality. With the doctor's approval, we stopped giving him Siferol and chose to try the Ability Health Center PD-5 protocol, which we had previously investigated. After three months of therapy, he has made significant progress. The illness has been completely contained. There are no symptoms of persistent twitching, weakness, tremors, hallucinations, or muscle soreness. The PD-5 Protocol was obtained from abilityhealthcentre. com. Though you still need to determine what works best for you, I thought I would share my husband's story in case it could be helpful. Greetings and prayers

FYI... WPC is looking for YOP fundraisers and stay tuned for how you can apply for these grants to attend #WPC2026 in Arizona!

World Parkinson Congress PD Avengers @followers
Some upcoming workshops on #YOPD #ndissupport #YOPX #youngonset #newlydiagnosed #superImage attachment
Happy Birthday Sam! And a FREE 12:30 Adelaide time NDIS session for you. 
Young Onset Parkinson’s South Australia Living & Working with Parkinson’s in Australia and New Zealand Parkinsons Australia@followers
Thanks to the Hon. Penny Wong - Senator for SA for helping us wrap up Parkinson’s Awareness Month. @followers Young Onset Parkinson’s South Australia #youngonsetparkinsons
As part of the Accessible Product Design Alliance we want to know what product designs are giving you grief at the moment. Take a short survey before May 10 to help inform our advocacy efforts. Thanks in advance! https://forms.gle/LoN656EUsTud1Ha17 

Arthritis Australia Arthritis New Zealand Cerebral Palsy Alliance Cystic Fibrosis Australia Huntingtons Australia MND Australia MS Australia Muscular Dystrophy Foundation Australia Parkinsons Australia Painaustralia Stroke Foundation @followers
⌚️Time to book your tickets ✔️ to next years conference in Canberra Living & Working with Parkinson’s in Australia and New Zealand The Growing Space #youngonsetparkinsons #ParkinsonsAwarenessMonth 🤩 #PANC2025 #conference Shake It Up Australia Foundation for Parkinsons Research