Employers should know everything about young onset Parkinson’s. I have been working with Parkinson’s for 3 years and I feel supported. I am the employer with young onset Parkinson’s, and the most debilitating issues with regards to my working capacity are tremor/Dyskinesia/Dystonia. Stressful times are the most difficult times. I consider flexibility to work around fluctuating symptoms as a helpful strategy to stay in the workforce longer. No formal assessment process has been undertaken to determine my work capacity and support requirements, but I believe in full disclosure ASAP. I didn’t seek advice about my rights as an employee. I am the employer, and my staff and partners are extremely supportive.
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