FAQs
It’s important to recognise that women face unique challenges when it comes to Parkinson’s. These challenges stem from biological and social factors affecting progression and treatment.
Women may experience different symptoms and medical side effects compared to men. For instance, the impact of sex hormones on Parkinson’s risk, progression, and response to treatments is a significant area of study. Research suggests that oestrogen may have a neuroprotective effect, potentially influencing the onset and progression of Parkinson’s in women.
Women also have the unique challenge of navigating PD whilst going through many hormonal stages in life, from those still menstruating through pregnancy, perimenopause, menopause and post-menopause.
You may also face difficulties in your roles as caregivers, which your own health needs can compound. It’s important to recognise that these caregiving responsibilities can often lead to neglect of your own health, further exacerbating the challenges you face. The emotional health and care partner experience are also areas where women may face unique pressures.
Absolutely! Many women with Parkinson’s have successfully raised a family post-diagnosis. Talk to your care team about supporting you throughout your pregnancy. Specifically, seek advice from a neurologist and OB/GYN.
Historically, Parkinson’s care and research have focused more on men, neglecting to consider relevant gender differences. However, there’s a growing recognition of the need for gender-specific research and care practices. This shift in focus brings hope and optimism for improving the quality of life for women with the condition, as it will lead to a better understanding and addressing of their specific needs.
Aussie women with PD are invited to be part of a first-of-its-kind study and help us make a difference in the lives of women with Parkinson’s worldwide. 📢 Can we count on you to participate? GO TO >> www.mymovesmatter.com/uccpilotstudy
We are running a global, first-of-its-kind study in collaboration with Richelle Flanagan and researchers from University College Cork, Ireland, to understand the impact of these different stages of life on women with Parkinson’s. We are recruiting women of all ages living with Parkinson’s in Australia for this study. The study runs until the end of this year, and we would love to encourage women in Australasia to participate.
Explanatory videos and a webinar explain the current research on women with PD. The webinar includes a researcher from UCC explaining the study: https://www.youtube.com/@MyMovesMatter. My Moves Matter Digital Self-Care Companion is here to support you and help you understand what works best for you to live your best life with Parkinson’s.
Navigating life with young onset Parkinson’s is a journey that’s as unique as you are. Your experiences, choices, and lifestyle all play a role in shaping this adventure. Everyone with Parkinson’s has their own set of challenges and victories, and no two paths are the same. While some patterns may be common, the course of Parkinson’s is full of surprises and silver linings. It’s impossible to predict exactly what symptoms might pop up, their timing, or how intense they’ll be. But remember, this is your story, distinct and different from anyone else’s. You’re not alone, though—here are some questions often asked by others walking a similar path.
Parkinson’s Australia National Conference
6-8 April 2025, National Convention Centre Canberra, ACT
