1. How important is being in an intimate relationship to you?: Very
2. Are you currently in an intimate relationship?: Yes
3. If you are single, do you feel there are any barriers to you dating?:
4. Do you feel differently about intimacy than before you were diagnosed?: No
5. Are you experiencing any physical barriers to a satisfying intimate relationship?: Continence and fatigue
6. Are you experiencing any emotional barriers to a satisfying intimate relationship?: More emotive,
7. Have you undertaken any treatments that have impacted positively or negatively on your relationship, for example medications or procedures such as Deep Brain Stimulation (DBS)?: Help with vagina dryness
Help with incontinence with neuro continence Urologist
8. Are any of the following factors impacting on your ability to have an intimate relationship?:
- Fatigue
- Lack of sleep
- Depression
- Stress
- A feeling of being overwhelmed
- Impact of changes in partner roles
9. Have you/are you experiencing any of the following::
- Vaginal dryness
- Fear of incontinence during sex
10. Have you found any of the following strategies useful or do you feel they may be useful?:
- Focusing more on casual intimacy like kissing and touching
- Talking to your partner about your concerns
- Increasing exercise to improve mobility and stamina
- Going to the toilet before sex
- Sex toys
11. Do you feel it would be useful for the App to provide free access to a Relationship Therapist for online advice specifically in relation to young onset Parkinson’s?: Yes
12. What would you like a Relationship Therapist to know about young onset Parkinson’s?: Yes
13. If you have children, what questions should we be asking them to assist with the development of our children’s survey?: When my friends ask me about my mummy’s shaking what should I reply?
14. Any additional information?: No
