FAQs

Young onset Parkinson’s is diagnosed before the age of 50. While symptoms are similar to regular Parkinson’s, its onset at a younger age presents unique challenges including work, young families and social life. It’s about navigating these challenges and knowing which supports to access while staying informed and empowered.

Absolutely! Maintaining an active lifestyle is crucial. Exercise is the only thing that has been shown to slow progression of Parkinson’s. When tailored to your abilities, exercise can improve mobility, medication uptake, mental health and overall wellbeing. Talk to your care team about creating a personalised fitness plan.

It’s possible to continue working with young onset Parkinson’s. Open communication with your employer, exploring flexible working arrangements, and seeking support from colleagues can help maintain a fulfilling professional life. You may also be eligible for NDIS supports to help with increase costs of maintaining your wellbeing so you can continue to work.
Yes, there are numerous communities and support groups tailored to individuals facing young onset Parkinson’s. Connecting with others who share similar experiences can be empowering and provide valuable insights. Search online or contact the infoline to be connected to a group near you.
While relationships may evolve, many people with young onset Parkinson’s maintain fulfilling social lives. Open communication about the impacts of your symptoms with friends, colleagues and loved ones helps them understand your journey, fostering stronger connections.
Absolutely! Adapting your favourite activities to your abilities and discovering new interests can be empowering. Many hobbies can be modified to suit your needs and bring joy to your life. Staying socially connected and engaged in things you enjoy is an important part of maintaining your quality of life with Parkinson’s.

Be an active participant in your healthcare journey. Educate yourself about your condition, ask questions, and work collaboratively with your care team. Your voice matters in shaping your care plan as it should be tailored to your goals and priorities. Bring along a care partner, support worker or friend to help advocate with you if you are feeling uncertain.

Yes, there are various technologies, including Apps and wearable devices, designed to assist with symptom tracking, medication reminders, and overall wellbeing. Exploring these tools can enhance your daily life.

Share information about young onset Parkinson’s openly and honestly. Encourage loved ones to ask questions and provide them resources to help them understand the condition better. Communication is key. They can also download the App or read the stories from others living with young onset online.

Yes, travel is possible! Planning ahead, considering accessibility, and communicating your needs can make exploring the world an enriching experience. Many people with young onset Parkinson’s continue to embark on exciting journeys.

Remember, living with young onset Parkinson’s is a unique journey, and you have the power to shape it in a way that aligns with your goals and aspirations. Stay informed, stay connected, and embrace the possibilities.