What is a clinical trial?

Clinical trials are research studies designed to evaluate new treatments, interventions, or approaches to managing Parkinson’s. These trials help determine the safety, effectiveness, and potential benefits of new therapies before they become widely available.

One of the biggest challenges in treating Parkinson’s is that there are still no medicines that can slow down how the condition gets worse over time, even though many clinical trials have tried to find one.

Why should you participate?

Participating in a clinical trial allows people with and without Parkinson’s to contribute to scientific advancements, access cutting-edge treatments, and help shape the future of Parkinson’s care.

  • You can help advance science and future treatments.
  • You may gain access to new therapies not yet widely available.
  • You’ll be closely monitored by medical professionals.
  • You’re helping others with Parkinson’s, now and in the future.

Getting more people involved in Parkinson’s research

Not everyone has the same chance to join Parkinson’s research. Some people may not know about opportunities to participate in Parkinson’s research, or they may not live near a clinic that specialises in it. This can make it harder for certain groups, especially people from underrepresented backgrounds, to take part in research. n.b. DBS also often precludes people from participating in trials, and sometimes, if you are on medications or advanced therapies already, you cannot participate. Always look at the patient information sheet for eligibility requirements for trials, as there’s a trial out there for everyone.

How do I access a clinical trial in Australia?

First, talk to your neurologist or GP; they most likely have other patients participating in trials. Parkinson’s Australia have a register of clinical trials going on in Australia, which you can view here. You can also visit the Australian Clinical Trial Finder to search for studies.

Step 1: Search for available trials

Step 2: Speak to your care team

  • Consult your neurologist or GP to determine if a trial is suitable for your condition. You may be asked to come off your medications for all or part of some trials. DO NOT GO OFF YOUR MEDICATION WITHOUT PROPER GUIDANCE.
  • Others in your care team may also know of trials that focus on occupational therapy, diet, exercise, physical therapy, and more… don’t be afraid to ask.
  • Discuss the trial’s potential risks, benefits, and eligibility criteria with your care team.

Step 3: Register your interest

  • Contact trial coordinators to enquire.

Step 4: Understand your rights & responsibilities

  • Participation is voluntary, and you can withdraw at any time.
  • Ensure you receive detailed information about the trial’s purpose, duration, and procedures.

We regularly advertise trials through our social media and emails, so follow us to stay updated and hopeful about these opportunities. Sign up for Parkinson’s Australia’s newsletter to receive updates.

This information was reviewed by MDSANZ CTN and is taken from the Parkinson’s Australia infosheet: https://www.parkinsons.org.au/information-hub/clinical-trials/

If you are a researcher, you can register your trial with us here.

 

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