Staying connected with Parkinson’s: why it matters

Staying socially connected is just as important as eating well, drinking water, and having a safe place to live to everyone’s quality of life. Humans are naturally social, and meaningful connections help us feel supported, valued, and understood.

What do “social isolation” and “loneliness” mean?

  • Social isolation happens when you don’t have many opportunities to see or talk with others. This might occur if you live alone or find it difficult to get out and about.
  • Loneliness is the feeling of being alone, even if you are surrounded by people. It can happen if you don’t feel understood, don’t have someone to share your thoughts with, or miss being part of a group.

Both can affect anyone, and it’s even possible to feel lonely even when living with family.

Why connection matters

Having strong social supports in place helps us manage stress, improve sleep, and even support our immune system. Research shows that staying connected as part of your healthy lifestyle can be as powerful as fine-tuning your medications and maintaining a balanced diet, and just as beneficial as exercising regularly for Parkinson’s symptom management.

For people living with Parkinson’s, staying connected can sometimes feel more challenging. Symptoms such as tremor, speech changes, or facial masking may make socialising harder. Non-motor symptoms like anxiety, apathy or low mood can also reduce your motivation to reach out to others. But connection is still possible,  and hugely beneficial!

In fact, people with Parkinson’s who feel supported often report better wellbeing, that their symptoms are less severe, and they feel more confident managing their condition.

What the research shows

Studies have found that more than half of people with Parkinson’s feel isolated at times. Care partners, too, often share these feelings.

What can help

You don’t need a lot of friends and family to feel connected; just a few meaningful relationships can make a huge difference. Here’s some ideas:

  • Reach out to others: Call a friend, check in with a neighbour, or join a support group.
  • Share your interests in a group class or club setting. Hobbies and interests like singing, painting, gardening, or playing an instrument can all be enjoyed with others.
  • Move together by joining an exercise class, walking group, or dance class instead of doing these things alone. Movement and connection are a powerful combination for wellness in Parkinson’s.
  • Explore support groups through local organisations: State and territory Parkinson’s organisations offer young onset support groups. Parkinson’s Australia has online monthly roundtables, and the biennial National Conference to help you connect. Care partners and young carers can also find support through Carers Australia.

You are not alone

Connection is about more than avoiding loneliness; it’s about finding things you find joy in and maintaining purpose. Whether through family, friends, support groups, or community activities, each connection you make is a step toward better wellbeing.

At Parkinson’s Australia, we are working to create more opportunities for connection, understanding, and care.

References: 

González, D. A., Tosin, M. H. S., Warner-Rosen, T., Afshari, M., Barton, B., Fleisher, J. E., Hall, D. A., Kirby, A. E., Kompoliti, K., Mahajan, A., Patel, N., Swan, C., & Goetz, C. G. (2025). Loneliness in Parkinson’s disease: Subjective experience overshadows objective motor impairment. Parkinsonism & related disorders, 136, 107867. https://doi.org/10.1016/j.parkreldis.2025.107867

Prenger, M. T. M., Madray, R., Van Hedger, K., Anello, M., & MacDonald, P. A. (2020). Social Symptoms of Parkinson’s Disease. Parkinson’s disease, 2020, 8846544. https://doi.org/10.1155/2020/8846544

Subramanian, I., Farahnik, J. & Mischley, L.K. Synergy of pandemics-social isolation is associated with worsened Parkinson severity and quality of life. npj Parkinsons Dis. 6, 28 (2020). https://doi.org/10.1038/s41531-020-00128-9

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