Preparing for travel with Parkinson’s

Travelling with young onset can be challenging, but with careful planning, you can ensure a smooth and enjoyable trip. Here are some tips to help you prepare:

Before you go

  1. Consult your doctor: Discuss your travel plans with your neurologist or GP. They can advise you on how to manage your medication schedule, especially if you’re crossing time zones.
  2. Medication: Carry enough for your entire trip, plus a few extra days in case of delays. You can let your GP and pharmacist know your travel plans, and they should fill extra scripts for your trip. Keep medications in their original containers and pack enough in your carry-on bag with extras in your partner’s or in your checked-in luggage. If you are prone to travel sickness or take other medications, be sure to check for any contraindications. 
  3. Travel insurance: Ensure your travel insurance covers pre-existing conditions like Parkinson’s. This will provide peace of mind in case of medical emergencies. Get help to find the right insurance for you. Take a look at online resources, such as the travel insurance buying guide and ‘Travelling with a Disability’ (CHOICE).
  4. Medical documentation: Have a letter from your doctor detailing your condition, medications, timing of medications and any special needs. This can be helpful in case you need medical assistance while away. 
  5. Accommodation: Book accessible accommodation in advance. Request rooms close to elevators or on the ground floor if you have mobility issues. Ask if they have airport shuttles to make transit easier. 
  6. Rest days: Build in and plan for rest days into your itinerary to allow for recovery and relaxation.
  7. Pack smarter: Get luggage that is easy to use. Bring a backpack so you can have everything you need with you and be hands-free. Have needed things accessible to you with security checkpoints (electronic devices, batteries) and what you will want to use on the plane in mind (charging cords, headphones). Don’t forget your meds and water bottle.
  8. Embrace technology: Check out Apps like SAM, schedule medication reminders through e.g. Apple Health which can help through crossing timezones, use google translate or download language translators (maybe even get some language training prior to travel), reach out to people with Parkinson’s online or seek out support groups in the areas you are travelling to.
  9. Companion card: Apply for a companion card if you qualify for one, so that you get the special rates and assistance.
  10. Invisible disability lanyard: Apply for an Invisible Disabilities Lanyard or see if the airport you are travelling to has Sunflower Lanyards for you.

During your trip

  1. Stay hydrated: Drink plenty of water to stay hydrated and keep your medications working well. Bring a water bottle along, and be sure to refill along the way. Know where the toilets are (for travel around Australia you can request a Master Key, search public toilet locations on maps).
  2. Stick to your routine: Try to maintain your regular medication schedule and exercise routine as much as possible.
  3. Ask for assistance: Don’t hesitate to ask for help at airports, train stations, restaurants or hotels. Many places offer special assistance for travellers with disabilities.
  4. Pack comfort items: Bring items that make you comfortable, such as a travel pillow, water bottle, snacks, and entertainment for long journeys. 

Minimising stress and anxiety

  1. Plan ahead: Detailed planning can reduce uncertainty, anxiety and stress.
    • Know your itinerary and have backup plans in case of changes.
    • Know what the airlines/airports/security require in terms of your DBS, pumps or mobility devices so you are not taken by surprise when you get there. 
  2. Practice relaxation techniques: Techniques like deep breathing, meditation, or yoga can help manage stress and anxiety.
  3. Stay connected: Keep in touch with family and friends. Knowing that you have a support system can provide comfort.
  4. Take breaks: Allow yourself time to rest and recharge. Don’t overexert yourself trying to keep up with a packed schedule. Small regular breaks will allow you to avoid overwhelm and burn out.

Supports in Australia

  1. Some airports provide sunflower lanyards, a globally recognised sign for hidden disabilities. Make sure you request one when you book your travel, as it may take at least 48 hours to organise, and only some Australian airports participate in giving out FREE lanyards or you can purchase one here. You can also use your invisible disabilities lanyard if you have one.
  2. Check with your travel agent and on other modes of transport before you book your fares to ensure you have the supports you need when you travel. Be sure to mention if you have a companion card and ask for the disability line when booking. Sometimes any special needs can be noted on your tickets.
  3. Also to make sure your Parkinson’s is noted on any travel insurances to avoid unpaid claims for not disclosing this.
    • Airlines have special assistance/disability lines that you or your carer can ring to book you and your companion’s tickets. Keep in mind, other airlines may have cheaper base rates, so shop around to find the best prices…
    • Qantas Carer Concession Card – People with Disability Australia – Carer Discount on Qantas Flights – The new QCCC discount is 30% off the base fare for domestic flights and 10% off international.

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