Employers should know everything about young onset Parkinson’s. I have been working with Parkinson’s for 3 years and I feel supported. I am the employer with young onset Parkinson’s, and the most debilitating issues with regards to my working capacity are tremor/Dyskinesia/Dystonia. Stressful times are the most difficult times. I consider flexibility to work around fluctuating symptoms as a helpful strategy to stay in the workforce longer. No formal assessment process has been undertaken to determine my work capacity and support requirements, but I believe in full disclosure ASAP. I didn’t seek advice about my rights as an employee. I am the employer, and my staff and partners are extremely supportive.

Share

Other articles

  • It’s hard work but I keep fighting

    I was diagnosed with Young Onset Parkinson’s at the age of 43, and I have been living with the symptoms of young onset Parkinson’s for 20 years.

  • Trialling red light therapy

    I was diagnosed with Young Onset Parkinson’s at the age of 53, and I have been living with the symptoms of young onset Parkinson’s for 4.5 years.

  • Trying melatonin

    I was diagnosed with Young Onset Parkinson’s at the age of 51, and I have been living with the symptoms of young onset Parkinson’s for 7 years.